| JULY 29, 2002 Today was my new patient appointment with Dr B. the neurologist. I liked him and thought he had a good sense of humor. He said it was obvious I had a strong understanding of my health and disease process so he saw no reason to see me but every three months. He also did not think I needed to be subjected to any more neurological testing unless there was some new symptomology or change in current symptoms. I am to continue the Betaseron shots indefinitely but he said they were working on an oral form and as soon as it was available he wanted me to switch. His big concern was my quality of life. Quality of life? Well, that's a new one on me. I have not felt that any doctor cared as much about how I felt as having a name to a disease process. Anyway, he feels I was probably dealing with some pretty substantial fatigue [and that is why I cannot hold my head up or talk clearly at times] and he really wanted to do something about it so I could at least enjoy life. So, he has given me a new script. Provigil. It is a Schedule IV drug used primarily for narcolepsy to increase alertness and decrease fatigue. It runs about $150/month but they do have a prescription assistant program. However, they denied me as it is only approved for use in narcolepsy. I'll have to wait as my prescription costs are too high now. Also, he wants to double my Florinef. He said my blood pressure is too low and as such, will give me a life-has-been-sapped-from-me feeling. I kind of balked at that because the last thing I want is to increase my steroid use and therefore my weight but he said it was a different type of steroid and would not cause me to gain weight. Well, since I was over at the hospital I dropped off the paperwork at Dr R. for the free Effexor so that is in the works. And then I made my way to Dr. D. and picked up another copy of my pre-op orders as Shadow ate mine. Yes, my dog ate my homework. LOL... I wasn't sure if I could eat today but I can. It's tomorrow where I can have one egg and one piece of dry toast then nothing but clear liquids until 6AM Wednesday and then I will have nothing until I get home around 6PM I am guessing. |
You are listening to Memories from the musical Cats, written by
Andrew Lloyd Webber and T.S. Eliot. I felt this song was a perfect
selection
for this site because of the affiliation I feel with Grizabella. Although
for her,
it was age and not health issues that changed her, neither of us are who
we
were before, on the outside, and it can affect how we feel on the inside.
Disclaimer:
The author of this page does not promote, support, or recommend any
particular treatment or medication for any medical condition. The opinions
expressed in stories or links are the responsibility of their authors.
No treatment should be undertaken without the supervision of a physician.
Website created, designed and maintained by JO
© 1998 - 2007 Jo Trackler
All Rights Reserved
This site may be freely linked to but not duplicated in any
fashion without my consent.
Since December 19, 2003